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Brigid
Joined: Oct 12, 2007
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Country: Australia
Province/State: Victoria
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families and carers of people with a disability
October 21, 2007 - 03:57 AM
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there was a recent survey in australia that found that more than a third of Australia's carers are severely depressed and they have the lowest sense of well-being of any group ever recorded.
My sister was diagnosed with autism when she was 3- i was only 3 weeks old so it's been something i've had to cope with my entire life. I can defiantly see how this survey gained this result- growing up with a sister with a disability is an incredibly stressful and often very upsetting experience-especially receiving little help from the government as the families of disabled people are often overlooked.
I was wondering if it was any better in other countries? If you are or know someone who lives with someone with a disability and what your experience has been?
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Olowoyeye Oluwatosin Anu
Joined: Oct 16, 2007
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Province/State: Lagos
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Re: families and carers of people with a disability
October 22, 2007 - 06:24 AM
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Hi,
The situation of people living with disability is also pathetic in africa. I've got a few of them as friends and I do see what they do go through especially when there is no help and assistance from the Government! *
I do pray that God would put me in a better and higher position where I could affect their lives positively, encourage them and give them every necessary assistances needed. The little I could do within my community is detailed in here (myblog): www.gkcfoundation.blogspot.com.
One love.
This post was edited on: 2007-10-22 at 06:32 AM by: Olowoyeye Oluwatosin Anu
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Jenny
Joined: Jul 11, 2006
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Re: families and carers of people with a disability
October 23, 2007 - 08:56 PM
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Hello,
I think that you bring up a very important issue, and I can see how the issue of persons with disabilities is something that is very close to your heart because of your experience with your sister.
It is interesting top read about your views as an Australian. I am from Canada, and as some one who has worked at the Autism Resource Centre (ARC) in my community, I have learned about the government's role in relation to autism to a small degree.
The director of ARC is a woman whose son has autism. He was healthy when he was born, but she believes, as do many other parents in Canada who have children with autism, that the vaccinations he was given when he was less than a year old led him to autism. I cannot comment much more on this because I do not know specifics, but I do know that this woman is enraged regarding the secrecy behind these vaccinations which seem to have left many children in the early 1990's with autism.
As the director of ARC, this woman is extremely passionate about autism, and it is her life's goal to lobby the government for more funding for autism research, treatment, and services to those who live with autism and their families. She does not feel that the Canadian government has been copperative, and is frustrated with the bureacracy. According to her, very little funding and services is available to people with autism, such as in the field of education, which would address your question regarding careers for people with disabilities. For her, there have been small policy changes that have come about because of her advocacy work. For example, she writes letters to government officials, gets petitions signed, and writes editorials in local newspapers to try to gather media attention. Every little bit is positive, even if it just makes one more person aware of the importance of these issues!
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Shweta
Joined: May 20, 2006
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Re: families and carers of people with a disability
November 13, 2007 - 05:51 AM
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When the environment- its systems and services- do not adequately support a person with disability or his/her family, it does make things difficult in many areas.
For many, identification of disability also gets delayed and therefore parents/carers suffer due to lack of information. However, even with information, life does not become easy because everything around us is built to serve the needs of majority-i.e. people who do not have visible disability. So, a person with visual and hearing impairment may take a long time to get admission in school because no school is ready to take the child due to lack of preparedness of thier own institution. This is just an example.
In reality, in India, most people with disability do not attain high level of education and there are hardly any options for their employability ...unless in the lower end of the economic chain.
With such lack of options and exclusion from society, parents not only feel the burden of care but also worry about the future of their child. Ont of their questions tillnow has no answer- what will happen to our children after us?
I wonder if someone has the answer to this?
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